When I started this blog after Caroline was born, I thought it would be a place that would primarily focus on Caroline's MCAD (Medium-chain acyl-CoA dehydrogenase deficiency) diagnosis. Within a few months of dealing with the frequent feedings, it became clear that MCAD was not going to rule our lives. Instead it would just be a very small (yet important) component of our everyday.
Fast forward 3 years. Caroline turned 3 on June 1st. Abigail is 7 months. She also has MCAD. And while Abigail has given us a run for our money (3 ER visits so far), we still are so grateful that their conditions are very manageable. The truth is that these girls were meant to go through this journey together. The moment I realized that was the moment I found peace with the sleepless nights ahead.
My hope is that if a new MCAD parent stumbles upon this blog, it gives them a sense of peace of mind. Something I was lacking 3 years ago when we got a call from the hospital.
If you're curious about MCAD, see here. And, unless something major happens, that will be the most MCAD talk you'll see on this blog for a while.
See you soon!
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